Autism, weed

I can predict the future

About every 3 months or so, I have what I refer to as a POTS day. I’ve written more in detail about this syndrome in my earlier posts. Everyone with this condition has bad days. Some feel this way every day, where some, like me, are lucky to only experience it every so often.

I am writing this the day before the episode will begin. How do I know I’ll have a POTS day tomorrow? There are some general signs. Migraines are the first clue. Next, I start to feel dizzy and unsettled. When that hits, I know tomorrow is going to be rough. A POTS day usually means I feel dizzy, tired, and generally sick. My heart rate is also very high.

Depending on how bad the day is, I might have to take off work. There are times when I only feel horrible standing. Therefore, I can safely get to work and do limited tasks. There are other times, however, that I feel dizzy and sick, even when lying down. Those are the worst days.

My POTS has been getting better over time. In fact, my last episode was over 5 months ago, which is a new record for me. In the meantime, I’m going to nap and eat doctor prescribed McDonalds. There are some benefits to a fucked up neurological system.

Autism, weed

POTS

No, no. A different kind of pots. Along with autism and no common sense, I was blessed with Postural Orthostatic Tachycardia Syndrome. In the most basic terms, it’s a neurological condition that is most likely related to my autism. It means when I stand or sit down, my heart rate shoots up and my blood pressure drops down, which can cause me to pass out. I also have sneezing syncopy, which means I pass out if I sneeze too much. Fun, huh? I was diagnosed when I was 18, and it honestly affects my day to day life more than the autism. I can only work 20 hours a week and I sometimes have days when I can’t get out of bed. On the plus side, it really freaks people out when I sneeze and pass out. It’s super hilarious.

It also causes chronic fatigue. I have some days when I can’t stay awake no matter what I’m doing. When it happens, I can’t drive and I usually fall asleep at work. I have a block of time when the chronic fatigue happens, if it happens, and I make sure I get to work well before it could kick in.

The POTS causes a lot of inconveniences. I get dehydrated really easily, so I have to drink lots of water and have no caffeine, which almost killed me in the beginning. You never realize how much Diet Coke you drink until you can’t have it anymore. I also end up in the hospital a lot for rehydration, which will provide amusing fodder for later blog posts.

POTS is a relatively new diagnosis for me. It was really difficult when I got the POTS diagnosis because I had never had a problem that really affected my body. Throw any mental diagnosis to me and I can handle it. The physicality of the syndrome is a little scary, but it’s become just a fact of life now.